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Understanding autistic people’s experiences of being diagnosed with autism

Findings from our peer research report

We were commissioned by the North East and North Cumbria Integrated Care Board to carry out a peer research project around the support people receive before, during and after the process of being diagnosed with autism.

Working across the region, our researchers designed, delivered and wrote up the research which was framed around finding out what support people think would be useful and who should deliver this.

What is peer research?

Peer research is carried out by people who have lived experience of the subject they are researching. This project was delivered by peer researchers from Your Voice Counts who have received a diagnosis of autism as adults so their lived experience could inform how the research was designed and delivered.

Our findings

Click on the links below to download a copy of our final report or to watch a short video of our findings presented by our peer researchers to a meeting of the Integrated Care Board.

YVC ICS Autism Peer Research Report
Download PDF • 796KB

Survey prize draw

As part of the research, we carried out seven focus groups and received over 300 survey responses with anyone who completed the survey able to enter a prize draw to win a £100 Love2Shop voucher. Visit Survey winner ( to see our winner and why she was keen to take part in the research.

More information

For more information about this research, please contact Lindsay Henderson, Head of Communities at Your Voice Counts, at


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